Join the Leaders Shaping the Future of Spina Bifida Care

The Spina Bifida Association (SBA) invites you to the 2023 World Congress on Spina Bifida Research & Care (SBWC 2023) – the only conference dedicated solely to the research, practical challenges and real-life solutions for those living with Spina Bifida. With a little more than a week to go, excitement continues to build. This is the chance to:

Engage with experts and thought leaders
  • Network across disciplines with those focused on research and/or treatment of Spina Bifida
  • Participate in the preeminent conference showcasing Spina Bifida research
  • Develop collaborations for future research projects.

The word is out, SBWC 2023 will shape the future of Spina Bifida care and we hope to see you there.

Click for the 2023 World Congress on Spina Bifida Research and Care Program.
SBA Event App
In an effort to move forward with technological advancement and to help make your World Congress on Spina Bifida Research & Care a more valuable experience, SBA is pleased to present the 2023 World Congress on Spina Bifida Research & Care App. To download the app, search for SBA Events in the Apple or GooglePlay app store. You can access the desktop version by Clicking Here
Location
Loews Ventana Canyon Resort
7000 North Resort Dr. Tucson, AZ 85750
Date & Time
Pre-Conference: March 22, 2023
Conference: March 22-25, 2023
Still Time To Register
Onsite registration is available. If you plan to register onsite please contact [email protected] or 866-792-5399 and a member of the team will send pre-conference materials and your badge will be waiting for you when you arrive.
Location
The 2023 World Congress on Spina Bifida Research and Care will be held on March 22-25, 2023, at the Loews Ventana Canyon Resort in Tucson, Arizona.
Loews Ventana Canyon Resort
7000 North Resort Dr. Tucson, AZ 85750
The room block at the Loews Ventana Canyon is sold out. Click here for a list of hotels in the area.
If you experience difficulty finding a room reservation please contact Site Solutions Worldwide at [email protected] or 866-792-5399 and a member of the team will assist you.
​​​​Transportation from Airport
Tucson International Airport (TUS) and Phoenix Sky Harbor International Airport (PHX) are options when planning travel.

Travel information - to and from the airport.

Uber and Lyft also offer transportation options. Rides can be scheduled in advance. Apps can be downloaded from the App Store.
World Congress Program
Schedule at a Glance
Times and content are subject to change. Continuing Education Credits will be offered. *Pre-registration for session required.
Tuesday, March 21
1:00 PM-5:00 PM CDC UMPIRE Meeting - By invitation.
Executive Boardroom

Day 1 - Wednesday, March 22
8:30 AM-12:30 PM CDC NSBPR Meeting - By invitation.
Grand Ballroom - Salon A
10:00 AM-7:00 PM Registration Open - Promenade
12:00 PM-1:00 PM Preconference Session - An Introduction on the (CO-OP) Approach*
Grand Ballroom - Salon B
1:00 PM-3:00 PM Preconference Session - Transition to Adult Care and Independence*
Grand Ballroom - Salon B
1:30 PM-5:30 PM UMPIRE Urodynamic Optimization Conference - By invitation.
Executive Boardroom
3:00 PM-6:00 PM Preconference Session - Global Health Symposium*
Grand Ballroom - Salon B
6:00 PM-8:00 PM Exhibit Hall Open - Grand Ballroom Foyer
6:00 PM-8:00 PM Opening Reception - Grand Ballroom Foyer
7:00 PM-8:30 PM Spina Bifida Association Board Meeting - By invitation. - Executive Boardroom

Day 2 - Thursday, March 23
7:00 AM-4:00 PM Registration Open - Promenade
7:00 AM-6:00 PM Exhibit Hall Open - Grand Ballroom Foyer
7:00 AM-8:00 AM Breakfast - Grand Ballroom Foyer
8:00 AM-6:00 PM Poster Session Open - Catalina Ballroom
8:00 AM-8:20 AM Opening Remarks - Grand Ballroom
8:20 AM-9:00 AM Spina Bifida Association Update
Grand Ballroom
9:00 AM-9:30 AM National Spina Bifida Program at Centers for Disease Control and Prevention
Update - Grand Ballroom
9:30 AM-10:00 AM Break - Grand Ballroom Foyer
10:00 AM-12:00 PM Planes, Trains & Automobiles: Access and Organization of Prenatal Surgery
Grand Ballroom
12:00 PM-1:00 PM Lunch - Grand Ballroom Foyer
1:00 PM-3:00 PM Concurrent Sessions
3:00 PM-3:30 PM Break - Grand Ballroom Foyer
3:30 PM-6:00 PM Concurrent Sessions
3:30 PM-6:00 PM Neuropsychologists Meeting - Neuropsychologists invited. Santa Rita
6:30 PM-8:00 PM SBA Professional Advisory Committee - By invitation. - Bill's Grill Terrace
7:00 PM-9:00 PM Spina Bifida Care Coordination, Social Work and Nursing Gathering - Care
Coordinators invited. - Hospitality Suite 2205
7:00 PM-9:00 PM Lifespan Bowel Management Protocol Workshop* - Grand Ballroom - Salon

Day 3 - Friday, March 24
6:30 AM-7:30 AM Breakfast - Grand Ballroom Foyer
7:00 AM-4:00 PM Registration Open - Promenade
7:00 AM-4:00 PM Exhibit Hall Open - Grand Ballroom Foyer
7:00 AM-6:00 PM Poster Session Open - Catalina Ballroom
7:30 AM-8:00 AM Highlights from Previous Day - Grand Ballroom
8:00 AM-10:30 AM Leveraging Evidence and Innovation to Empower Self-Management
Grand Ballroom
10:30 AM-10:45 AM Break - Grand Ballroom Foyer
10:45 AM-12:30 PM Mental Health Challenges in Youth and Adults with Spina Bifida
Grand Ballroom
12:30 PM-1:30 PM Lunch - Grand Ballroom Foyer
1:30 PM-3:30 PM Concurrent Sessions
3:30 PM-3:45 PM Break - Grand Ballroom Foyer
3:45 PM-6:00 PM Concurrent Sessions
6:30 PM-8:00 PM Networking Reception - Cascade Terrace and Bill's Grill Terrace
7:00 PM-9:00 PM Informal Gathering of Adults Impacted by Spina Bifida - Gathering is for
those attending the conference. Hospitality Suite 2205
7:30 PM-9:30 PM Neurosurgeons Meeting - Neurosurgeons invited. Santa Rita

Day 4 - Saturday, March 25
6:30 AM-7:30 AM Breakfast - Grand Ballroom Foyer
7:30 AM-8:00 AM Highlights from Previous Day - Grand Ballroom
8:00 AM-8:20 AM Young Investigator Awards and Judy Thibadeau Award
Grand Ballroom
8:20 AM-8:45 AM Hal Pote Lectureship Speaker
Grand Ballroom
8:45 AM-9:30 AM Lifetime Achievement Award and Tim Brei Award
National and International Perspective on the Prevention of Spina Bifida
Grand Ballroom
9:30AM-10:00 AM Break - Grand Ballroom Foyer
10:00 AM-11:30 AM Expanding the Role of Neuropsychology in Spina Bifida Clinics
Grand Ballroom
11:30 AM-12:15 PM The Relationship Between Self-Determination and Well Being
Grand Ballroom
12:15 PM-12:30 PM Closing Remarks - Grand Ballroom
Event Pricing & Registration
Online registration is closed.
Onsite registration begins Wednesday, March 22, 2023 at 10:00 a.m.

If you have questions regarding registration please contact Site Solutions Worldwide at [email protected] or 866-792-5399 and a member of the team will assist you.
Family Member
Regular | $600
Full Conference Pass
Adult with Spina Bifida
Regular | $600
Full Conference Pass
Medical Professional
Regular | $750
Full Conference Pass
CMEs will be available
Trainee
Regular | $500
Full Conference Pass
Students, Fellows, Post Docs, Residents
Young Investigator
Regular | $600
Full Conference Pass
Faculty members up to the level of Assistant Professor or equivalent for no more than five years as of 1/1/23.
Accompanying Guest
Regular | $300
Social Events Only
One Day Only Fees
Regular | $350
Single Day Pass
Pre-Conference
Introduction to CO-OP Method for people with SB
Regular | $150
Pre-Conference
Lifespan Transition to Care & Independence
Regular | $150
Pre-Conference
Global Health Symposium
Regular | $150
  

Pre-Conference Pass
Regular | $400

Access to all pre-conference sessions.
Thank you to all those who submitted an Abstract.
Abstract submission is closed. If you have a question, please contact:
Judy Thibadeau, RN, MN
Director of Research and Services
Spina Bifida Association
[email protected] or 202-618-4744
Sponsorship Opportunities
If you would like more information on partnering with SBA and sponsorship opportunities at the 2023 World Congress on Spina Bifida Research and Care, view the 2023 Prospectus here.

For more information, please contact:
Stephanie Myers, Manager of Corporate and Individual Giving
[email protected] or 847-269-1186
For Attendees
Facebook Post:
I’m attending the 2023 World Congress on Spina Bifida Research & Care. Join me and register today to get early bird pricing! www.sbworldcongress.org

Facebook Image:
Email Copy:
Hi [name],

I just registered for the 2023 World Congress on Spina Bifida Research & Care and thought you might be interested in attending too.

The World Congress will be held March 22 – 25, 2023 in Tucson, AZ. It’s the only international conference dedicated solely to the research, practical challenges, and real-life solutions for those living with Spina Bifida, their families and care givers.

I’m looking forward to networking with those whose focus is the research and/or treatment of Spina Bifida.

To learn more about World Congress, visit sbworldcongress.org.

Thank you,
[insert signature]
For Sponsors
Facebook Post:
We’re excited to be a sponsor at the 2023 World Congress on Spina Bifida Research & Care in March 2023. 
 
Looking forward to seeing you there! Learn more at www.sbworldcongress.org.

Facebook Image:
For Speakers
Facebook Post:
I’m excited to be speaking at the 2023 World Congress on Spina Bifida Research & Care, the preeminent conference showcasing Spina Bifida research.
 
This is a great opportunity to engage with experts and thought leaders and develop collaborations for future research projects.

I hope to see you there! Register today for the early bird rate at www.sbworldcongress.org.

Facebook Image:
 Join us March 22 - 25, 2023.
We look forward to hosting you!
Sponsors
Gold Sponsor
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Exhibitors

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