If you registered for the event and haven't received access information, please send us an email at [email protected].
Join advocates from across the country as we come together as one for the Spina Bifida Association's largest annual advocacy event - Teal on the Hill.
Connect with others in the Spina Bifida Community.
Advocate for access and care.
Educate decision-makers on topics that affect your day-to-day life.
Learn about the legislative process and how your voice can make an impact locally and nationally.
Share your voice and make your passions heard by speaking directly to House and Senate offices.
If you are interested in becoming a sponsor for this event, please contact Stephanie Myers, Manager of Corporate and Individual Giving, at [email protected].
Date & Time
February 25-26, 2024 Teal on the Hill virtual training
February 27, 2024 Virtual meetings with members of Congress.
All times are in EST
Sunday, February 25
1:30 PM Welcome and Introductions
2:00 PM Keynote: The Disbability Rights Movement and the Role of Spina Bifida Advocates in Creating Change Presented by John Kemp, President & CEO, Lakeshore Foundation 2:45 PM Break
3:00 PM National Spina Bifida Program Presented by Dr. Karen Remley, Director of the CDC's National Center on Birth Defects and Developmental Disabilities (NCBDDD)
3:45 PM Break
4:00 PM Transanal Irrigation: A Game Changer in Bowel Management Presented by our friends at Coloplast and Wellsepct
4:45 PM Day 1 Wrap Up
5:00 PM Adjourn
Monday, February 26
12:00 PM Day 2 Opening and Awards
12:30 PM Break
12:45 PM Hill Meeting Logistics
1:15 PM Breakout Groups and Hill Meeting Prep
2:15 PM Break
2:30 PM Raising Children to Be Self-Advocates
3:15 PM Break
3:30 PM Advocating as a Young Adult: Teal on the Hill and Beyond
4:15 PM Day 2 Wrap Up
4:30 PM Adjourn Tuesday, February 27 TBD Virtual meetings with members of Congress Scheduled throughout the day* This is your opportunity to attend meetings with your members of Congress. It's critically important that members of Congress hear your story.
*To attend meetings with your members of the House and Senate (virtually), registrations must have been received by February 9, 2024.
If you would like more information on partnering with SBA and sponsorship opportunities please contact: Stephanie Myers, Manager of Corporate and Individual Giving [email protected] or 847-269-1186.
The National Center for Birth Defects and Developmental Disabilities (NCBDDD) at the Centers for Disease Control and Prevention (CDC) houses the National Spina Bifida Program. The National Spina Bifida Program is the only place in the federal government exclusively dedicated to studying this chronic, complex condition affecting children and adults through its National Spina Bifida Patient Registry (NSBPR), the Spina Bifida Collaborative Care Network (SBCCN), and specific research projects.
Our Ask: Support a $11 million dollar budget for the National Spina Bifida Program. The program is currently funded at $7.5 million.
Take Action Now
Send a message directly to your members of Congress in just a few clicks through VoterVoice. You can use the populated message to show your support or add a personalized message.
This is our per-person cost of hosting this virtual event. If you are in a position to cover the cost of your ticket and another or if you're unable to pay the Standard Ticket price, see additional ticket options.