Schedule
All times are in EST
Sunday, February 25
1:30 PM Welcome and Introductions
2:00 PM Keynote: The Disbability Rights Movement and the Role of Spina Bifida Advocates in Creating Change
Presented by John Kemp, President & CEO, Lakeshore Foundation
2:45 PM Break
3:00 PM National Spina Bifida Program
Presented by Dr. Karen Remley, Director of the CDC's National Center on Birth Defects and Developmental Disabilities (NCBDDD)
3:45 PM Break
4:00 PM Transanal Irrigation: A Game Changer in Bowel Management
Presented by our friends at Coloplast and Wellsepct
4:45 PM Day 1 Wrap Up
5:00 PM Adjourn
Monday, February 26
12:00 PM Day 2 Opening and Awards
12:30 PM Break
12:45 PM Hill Meeting Logistics
1:15 PM Breakout Groups and Hill Meeting Prep
2:15 PM Break
2:30 PM Raising Children to Be Self-Advocates
3:15 PM Break
3:30 PM Advocating as a Young Adult: Teal on the Hill and Beyond
4:15 PM Day 2 Wrap Up
4:30 PM Adjourn
Tuesday, February 27
TBD Virtual meetings with members of Congress
Scheduled throughout the day*
This is your opportunity to attend meetings with your members of Congress. It's critically important that members of Congress hear your story.
*To attend meetings with your members of the House and Senate (virtually), registrations must have been received by February 9, 2024.