Join us February 25 - February 27 , 2024
If you registered for the event and haven't received access information, please send us an email at [email protected].
Join advocates from across the country as we come together as one for the Spina Bifida Association's largest annual advocacy event - Teal on the Hill.
If you are interested in becoming a sponsor for this event, please contact Stephanie Myers, Manager of Corporate and Individual Giving, at [email protected].
Join advocates from across the country as we come together as one for the Spina Bifida Association's largest annual advocacy event - Teal on the Hill.
- Connect with others in the Spina Bifida Community.
- Advocate for access and care.
- Educate decision-makers on topics that affect your day-to-day life.
- Learn about the legislative process and how your voice can make an impact locally and nationally.
- Share your voice and make your passions heard by speaking directly to House and Senate offices.
If you are interested in becoming a sponsor for this event, please contact Stephanie Myers, Manager of Corporate and Individual Giving, at [email protected].
Location
Virtual
Date & Time
February 25-26, 2024
Teal on the Hill virtual training
February 27, 2024
Virtual meetings with members of Congress.
Teal on the Hill virtual training
February 27, 2024
Virtual meetings with members of Congress.
Schedule
All times are in EST
Sunday, February 25
1:30 PM Welcome and Introductions
2:00 PM Keynote: The Disbability Rights Movement and the Role of Spina Bifida Advocates in Creating Change
Presented by John Kemp, President & CEO, Lakeshore Foundation
2:45 PM Break
3:00 PM National Spina Bifida Program
Presented by Dr. Karen Remley, Director of the CDC's National Center on Birth Defects and Developmental Disabilities (NCBDDD)
3:45 PM Break
4:00 PM Transanal Irrigation: A Game Changer in Bowel Management
Presented by our friends at Coloplast and Wellsepct
4:45 PM Day 1 Wrap Up
5:00 PM Adjourn
Monday, February 26
12:00 PM Day 2 Opening and Awards
12:30 PM Break
12:45 PM Hill Meeting Logistics
1:15 PM Breakout Groups and Hill Meeting Prep
2:15 PM Break
2:30 PM Raising Children to Be Self-Advocates
3:15 PM Break
3:30 PM Advocating as a Young Adult: Teal on the Hill and Beyond
4:15 PM Day 2 Wrap Up
4:30 PM Adjourn
Tuesday, February 27
TBD Virtual meetings with members of Congress
Scheduled throughout the day*
This is your opportunity to attend meetings with your members of Congress. It's critically important that members of Congress hear your story.
*To attend meetings with your members of the House and Senate (virtually), registrations must have been received by February 9, 2024.
1:30 PM Welcome and Introductions
2:00 PM Keynote: The Disbability Rights Movement and the Role of Spina Bifida Advocates in Creating Change
Presented by John Kemp, President & CEO, Lakeshore Foundation
2:45 PM Break
3:00 PM National Spina Bifida Program
Presented by Dr. Karen Remley, Director of the CDC's National Center on Birth Defects and Developmental Disabilities (NCBDDD)
3:45 PM Break
4:00 PM Transanal Irrigation: A Game Changer in Bowel Management
Presented by our friends at Coloplast and Wellsepct
4:45 PM Day 1 Wrap Up
5:00 PM Adjourn
Monday, February 26
12:00 PM Day 2 Opening and Awards
12:30 PM Break
12:45 PM Hill Meeting Logistics
1:15 PM Breakout Groups and Hill Meeting Prep
2:15 PM Break
2:30 PM Raising Children to Be Self-Advocates
3:15 PM Break
3:30 PM Advocating as a Young Adult: Teal on the Hill and Beyond
4:15 PM Day 2 Wrap Up
4:30 PM Adjourn
Tuesday, February 27
TBD Virtual meetings with members of Congress
Scheduled throughout the day*
This is your opportunity to attend meetings with your members of Congress. It's critically important that members of Congress hear your story.
*To attend meetings with your members of the House and Senate (virtually), registrations must have been received by February 9, 2024.
Sponsor Exhibit Hall
Teal Sponsors
Exhibitor
If you would like more information on partnering with SBA and sponsorship opportunities please contact: Stephanie Myers, Manager of Corporate and Individual Giving [email protected] or 847-269-1186.
The Asks
The National Center for Birth Defects and Developmental Disabilities (NCBDDD) at the Centers for Disease Control and Prevention (CDC) houses the National Spina Bifida Program. The National Spina Bifida Program is the only place in the federal government exclusively dedicated to studying this chronic, complex condition affecting children and adults through its National Spina Bifida Patient Registry (NSBPR), the Spina Bifida Collaborative Care Network (SBCCN), and specific research projects.
Our Ask:
Support a $11 million dollar budget for the National Spina Bifida Program. The program is currently funded at $7.5 million.
Our Ask:
Support a $11 million dollar budget for the National Spina Bifida Program. The program is currently funded at $7.5 million.
Take Action Now
Send a message directly to your members of Congress in just a few clicks through VoterVoice. You can use the populated message to show your support or add a personalized message.
Event Pricing & Registration
If you have questions regarding registration please contact
us at [email protected].
us at [email protected].
Standard Ticket
$50
This is our per-person cost of hosting this virtual event. If you are in a position to cover the cost of your ticket and another or if you're unable to pay the Standard Ticket price, see additional ticket options.
Community Champion Ticket
$100
Covers your cost plus a portion of another who cannot pay the full cost to attend this virtual event.
Community-Supported Ticket
$25
If you are unable to pay the standard ticket price for any reason, this is your no questions asked option to join the movement at a reduced rate, thanks to the support of a Community Champion.
To attend meetings with your members of the House and Senate (virtually) on February 27, registrations must be received by February 9, 2024.
Sponsorship Opportunities
Sponsorship opportunities are available. Please contact Stephanie Myers, Manager of Corporate and Individual Giving at [email protected].