Join Those Shaping the Future of Spina Bifida Care. 

The Spina Bifida Clinical Care Meeting (SBCCM) is a unique forum where you can access all that’s new, evolving, challenging and successful along with unparalleled opportunity to meet, network and collaborate. 

  • Connect with experts and thought leaders.
  • Engage with experienced professionals on how to develop and enhance Spina Bifida programs.
  • Participate in learning experiences relevant to the work you do.
  • Enjoy the right mix of educational sessions, networking and downtime with colleagues from coast-to-coast.
  • Explore our solutions-focused exhibit hall and learn about breakthroughs that can help improve the quality of life for those living with Spina Bifida.

Please click here for a 2024 Clinical Care Meeting flyer.
Sheraton Grand Sacramento Hotel
1230 J. Street
Sacramento, CA 95814
Date & Time
May 30, 2024
Lifespan Bowel Management Protocol Workshop

May 31- June 1, 2024
Spina Bifida Clinical Care Meeting
The 2024 Spina Bifida Clinical Care Meeting will be held on the campus of UC Davis Health, Betty Irene Moore School of Nursing Hall, 2570 48th Street, Sacramento, CA 95817.
Hotel Information
The 2024 Spina Bifida Clinical Care Meeting has selected the Sheraton Grand Sacramento Hotel, 1230 J. Street, Sacramento, CA 95814 for the conference room block. The negotiated rate is $213/night ($247/night with taxes and all fees included).

Please click here to make hotel room reservations.

If you experience difficulty making a room reservation, please contact the Sheraton Grand Sacramento Hotel directly at 866-238-4218 or guest reservations at 855-797-6733.
If you have questions about room reservations please contact Site Solutions Worldwide at [email protected] or 866-792-5399 and a member of the team will assist. you.
​​​​Transportation from Airport
Sacramento International Airport is the closest airport when planning travel.  For travel information to and from the airport please click here.

Options include:
rental cars
app based ride shares - Lyft and Uber
shuttles & more
public transportation.
Schedule at a Glance
Schedule Subject to Change - last reviewed Feb. 1, 2024
Thursday, May 30
6:00 PM-8:00 PM Lifespan Bowel Management Protocol Workshop

Friday, May 31
8:30 AM-8:35 AM Welcome
8:35 AM-9:00 AM SBA’s Approach to Improving Clinical Care and the Spina Bifida Collaborative Care Network
9:00 AM-9:15 AM Spina Bifida Transanal Irrigation Community Survey
9:15 AM-9:45 AM National Spina Bifida Patient Registry Update
9:45 AM-10:15 AM Prenatal Research and Transition of Care at UC Davis
10:15 AM-10:45 AM Break
10:45 AM-11:30 AM SBA’s Community Centered Research Agenda: Improving Clinical Care
11:30 AM-12:00 PM MOMS Update
12:00 PM-1:30 PM Lunch and Networking
1:30 PM-2:15 PM Breakout Sessions
2:15 PM-2:30 PM Break
2:30 PM-3:15 PM Breakout Sessions
3:15 PM-3:45 PM Break
3:45 PM-5:00 PM Interest Group Sessions
5:30 PM-7:00 PM Welcome Reception

Saturday, June 1
8:30 AM-9:15 AM Breakout Session
9:15 AM-10:00 AM Breakout Sessions
10:00 AM-10:30 AM Break
10:30 AM-11:15 AM My Experiences in Clinical Care: Panel of Adults and Parents
11:15 AM-11:30 PM Clinical Response
11:30 AM-12:15PM How Can Spina Bifida Clinics Contribute to Healthy Skin and Prevent Breakdown and Sepsis?
12:15 PM-1:00 PM Lunch
1:00 PM-1:45 PM Shriners Northern California Spina Bifida Clinic: Success and Challenges
1:45 PM-2:15 PM Who’s Thriving in the Spina Bifida Clinic World: What Benchmarking Work is Revealing
2:15 PM-3:00 PM Mindset Matters
3:00 PM-3:30 PM Closing Remarks
Event Pricing & Registration
If you have questions regarding registration please contact
Site Solutions Worldwide at [email protected] or 866-792-5399 and a member of the team will assist you.
Early Bird - $350
Regular - $425
Friday, May 31 - $375
Saturday, June 1 - $350
Regular - $300
Early Bird - $265
Regular - $425
Early Bird - $265
Regular - $425
Early Bird - $200
Regular - $425
Those affiliated with SBA Chapters are eligible for this pricing.
Early Bird  - $250
Regular - $425
Spina Bifida organizations and others groups aligned with the SBA mission.
Early Bird - $200
Regular - $425
Adults with Spina Bifida or Parents of Children with Spina Bifida.
Lifespan Bowel Management Protocol Workshop
The Lifespan Bowel Management Protocol (LBMP) Workshop will be held May 30. The LBMP Workshop is only offered to clinical care professionals. It is an additional cost. CME credit hours will be offered.

The LBMP Workshop is limited to 30 participants.

If you have questions regarding the LBMP Workshop please contact Judy Thibadeau at [email protected].
Speaker names and bios will be added as they become available.
Sponsorship Opportunities
If you would like more information on partnering with SBA and sponsorship opportunities please contact: Stephanie Myers, Manager of Corporate and Individual Giving [email protected] or 847-269-1186.

Please click here for information on sponsorship opportunities.
Sponsors and Exhibitors

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