Cataplexy can be one of the most confusing and misunderstood symptoms experienced by individuals with Prader-Willi syndrome. Families often describe years of uncertainty, unanswered questions, or difficulty recognizing what they were seeing before receiving clarity and support.

Join us for Shedding Light on PWS and Sleep: Understanding Cataplexy, a community-centered webinar bringing together individuals with lived experience, caregivers, and clinical experts to explore the real-world impact of cataplexy in PWS. Through personal stories and discussion, individuals living with PWS and cataplexy will share their experiences, challenges, and perspectives. Caregivers will discuss their journey to understanding and supporting their loved ones, while clinical experts will provide insight into what cataplexy is, how it presents in PWS, and why awareness and recognition are so important.

This webinar is designed to foster understanding, validation, and connection. Attendees will leave with a deeper appreciation of the lived experience of cataplexy, practical knowledge about the condition, and a reminder that no family is navigating these challenges alone.

Speakers:
Dr. Aaron Chidekel, Nemours Children's Hospital
Maria Picone, TREND Community
Justice Rickenbach, Living with PWS and Cataplexy
Charlotte Tan, Living with PWS and Cataplexy

Who Should Attend: 

• Parents and caregivers of individuals with Prader-Willi syndrome
• Individuals with PWS and their support networks
• Healthcare professionals interested in sleep and PWS
• Advocates, educators, and community members seeking to better understand cataplexy

For questions, please email [email protected]