Opening plenary - Advocacy that projects, support that empowers

This session highlights how the CLL Advocates Network (CLLAN) drives impactful, patient‑centered change by equipping advocacy groups with tools, data, and collaborative platforms. It explores how CLLAN’s European global initiatives translate into stronger national and regional advocacy empowering organizations to protest systemic gaps while supporting patients with credible, evidence‑based resources.

This session explores how breakthroughs in CLL therapies — from chemo‑immunotherapy to
targeted agents and time‑limited regimens —have transformed the patient journey. As survival
improves, the role of advocates shifts: from fighting for basic access to fighting for quality of life, long‑term support, and equitable survivorship care.

Real-world examples of how storytelling and patient-led advocacy have shaped policy, influenced decision-makers, and improved care.

Practical session on how cross‑ collaboration  between patient organisations and key stakeholders can expand reach, strengthen protest and advocacy efforts, and build more effective patient-support ecosystems across diseases, regions, and communities.

Practical frameworks for peer support, coaching, and community-building that strengthen patient agency and support active participation in care decisions.

Workshop

A session that shows advocates how to interpret clinical data, treatment guidelines, and trial outcomes — and use that understanding to influence access, reimbursement, and national cancer strategies.

The Advocate’s Toolkit: Turning Barriers Into Opportunities for Change
A practical session on identifying systemic obstacles (access, affordability, diagnostics, stigma) and using strategic advocacy techniques, such as coalition‑building, storytelling, and evidence‑based arguments to overcome them.

A practical session on identifying systemic obstacles (access, affordability, diagnostics, stigma) and using strategic advocacy techniques like coalition‑building, storytelling, evidence‑based arguments to overcome them.

To help advocates move from recognizing systemic gaps in CLL care to designing practical, achievable actions that improve patient outcomes in their own countries and contexts.

To help advocates move from recognizing systemic gaps in CLL care to designing practical, achievable actions that improve patient outcomes in their own countries and contexts.

An overview of how the healthy immune system works and how it becomes disrupted in CLL, including key concepts such as B- and T-cell dysfunction, hypogammaglobulinemia, and reduced vaccine response. The session also looks at how current therapies influence immune function over time, and what this means for infection risk, recovery, and daily life.

Bring the science to life through lived experience and highlight the shift from survival to quality of life. The session studies how both clinicians and patients interpret immune risk, The emotional and social cost of chronic infection vigilance, the navigation of workplaces, family life, travel, and community spaces and how advocates can support informed, empowered decision‑making.

Shift the conversation from mortality to quality of life and elevate immune challenges as a global advocacy priority. The session explores why shifting the discussion to immune health is critical and how to communicate the invisible burden of immune dysfunction. Advocates look at creating  campaigns to avoid stigma and building strategies to reach and influence clinicians, policy makers and the public, educating patients. 

A deep but accessible dive into the science of CLL B‑cells, mutations, microenvironment, resistance pathways, and how this knowledge fuels next‑generation treatments.

A comparative look at how CLL research, diagnostics, and treatment access differ around the world, and how advocates can push for equity without losing sight of scientific realities.

This energizing session spotlights powerful advocacy strategies shared by leaders across the globe. From grassroots mobilization to system-level change, discover adaptable, real-world approaches driving results. Learn how international perspectives can strengthen local action and inspire fresh thinking in your own advocacy experience.

A forward‑looking session on CAR‑T, biospecifics, next‑gen inhibitors, and precision medicine — paired with a candid discussion about affordability, regulatory timelines, and global disparities.

This session looks at where knowledge gaps persist in CLL care and how stronger collaboration between clinicians and patient organizations can help address them, improve understanding, and support better outcomes.