Thursday, March 30 - Saturday, April 1, 2023
VEA Newport Beach Resort, Newport Beach, CA
We are excited to see you in person at the 2023 Day of Hope Family Conference! Join us for three inspiring days spent with fellow members of the cystinosis community as we renew our friendships and strengthen the bonds that created this remarkable CRF family and research community. When we are together, magic happens!

On Thursday, March 30, the conference will begin with introductions followed by a welcome dinner. The sessions start on Friday morning and will conclude Saturday following lunch. Confirmed speakers include Sergio Catz, PhD, Stéphanie Cherqui, PhD, Morgan DiLeo, PhD, Francesco Emma, MD, Ana Alves Francisco, PhD, Benjamin "Beno" Freedman, PhD, Paul Grimm, MD, Stephen Jenkins, MD, Julian Midgley, MD and Sophie Molholm, PhD.

CRF is delighted once again to provide an outstanding complimentary childcare program for infants and children up to 12 years of age during the conference sessions, and there will be a special surprise for the teens!
Registration Opens at 3:00 p.m.
Welcome and Introductions
Mexican Fiesta Dinner 6:00 p.m.

Family Breakfast
Children's Activities
Conference Sessions
Family Lunch
Conference Sessions
Dinner Under the Stars

Family Breakfast
Children's Activities
Conference Sessions
Family Lunch
Family Assistance Fund
Thank you for your interest in joining us for the 2023 Day of Hope conference. The conference promises to be a weekend of hope and inspiration. We are pleased to let you know that a fund has been expressly created to help families and patients with some of the costs associated with the conference. We want to help everyone who needs assistance; however, we have a limited amount of funds available, and will do our best to help everyone who needs it.

We encourage you to submit this form as soon as possible. Please note that the information provided on the form is confidential and will not be shared with anyone other than the CRF family assistance committee and CRF staff.

The application form can be downloaded from the
CRF website.
Email the completed form to [email protected]
VEA Newport Beach Resort Accommodations 
900 Newport Center Drive, Newport Beach, CA 92660 
The 2023 Day of Hope Conference will be held at the VEA Newport Beach Resort in the heart of the Fashion Island Shopping Center. We look forward to welcoming our cystinosis families and encourage you to register as soon as you can to guarantee your attendance and ensure your hotel accommodations.

CRF has secured hotel rooms at a special flat rate of $275* per night for cystinosis families. Rates for other guests are $359 per night for king rooms and $439 per night for double queen rooms (plus tax and fees). The CRF team will coordinate with the hotel to make your reservation(s). The special rates are only available by requesting accommodations through our dedicated
reservation page.

There is no charge to attend the conference and all meals beginning Thursday afternoon through the Saturday luncheon are included free of charge. Children's activities and childcare during the conference sessions for infants and children up to 12 years of age are complimentary for all attending families (pre-registration is required).

We encourage all families to register as soon as possible as space is limited.
Hotel check-in time is 4:00 p.m. and check-out is 11:00 a.m.
CRF Day of Hope Co-Chairs
Welcome You

Clay Emerson, PhD, PE, CFM, Hope for Brooke

Jill Emerson, CPA, Hope for Brooke, CRF Board Member
Denice Flerchinger, Tina's Hope for a Cure, CRF Board Member
Stephen Jenkins
, MD, Sam's Hope for a Cure, CRF Board Member
Kristen Murray, Seth's Circle of Hope
Nancy Stack
, President, CRF Founding Trustee
Brian Sturgis
, 24 Hours for Hank, CRF Board Member
If you have questions, please email [email protected]

Cystinosis Research Foundation
19200 Von Karman Avenue, Suite 920
Irvine, CA 92612
(949) 223-7610

© 2023. All Rights Reserved.
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