Why I lost my kidneys...it's Genetics!
I have a genetic kidney disorder called APOL1-Mediated Kidney Disease (AMKD), which caused me to develop Focal Segmental Glomerulosclerosis (FSGS). This condition leads to scarring in my kidneys, preventing them from functioning properly. What makes my case unique is that while my family members carry the gene, they aren't affected like me. It was through a lab test, Renasight – a kidney gene panel by Natera Labs – that I discovered the genetic cause behind my condition, helping me understand why this happened to me.
When I was 36, both of my kidneys failed, and I had to rely on dialysis while waiting for a transplant. At the time, my wife Jen and I had a four-month-old baby, and both of us worked full-time. It was an incredibly challenging period in our lives. Then, on October 2, 2008, I was blessed with a kidney transplant from a deceased donor. It was one of the best days of our lives.
For the past 16 years, I’ve taken great care of my transplanted kidney, which has outlasted the typical 10-year lifespan of a deceased donor kidney. Unfortunately, my kidney failed in December, and I started dialysis again in January 2025.
A little about Me...
I am a first-generation American; my parents became U.S. citizens in the early 1970s. I grew up in the Bronx, NYC, where I learned English, Spanish, French, and Italian and attended a strict Catholic school. My childhood was filled with love and support from my amazing parents and my big brother. Eventually, I ended up in Louisiana for college, where I met my southern wife of 20 years, Jennifer. My first and only knowledge of a kidney transplant was from the movie Steel Magnolias, not knowing that topic it would play a major role in our lives.
Helping others has always been a passion of mine, which led me to a 25-year career in law enforcement. Over the years, I’ve worked in the city and on highways, served as a member of the Joint Terrorism Task Force (JTTF), been a K9 handler on an explosive team, spent many years in investigations, and now work in the tech unit.
Currently, I continue to work full-time. In my free time, I enjoy traveling, learning, cooking, and, in healthier times, running. I have completed many marathons since my transplant. I’m also a huge animal lover with a Rottweiler named Lucy Roux, a toy Australian Shepherd named Blue, and two gray tabby cats, Remi and Mazie. I have remained committed to my Catholic faith, and my family and I attend mass every week together.
My family is everything to me. Jen and I are proud parents to two amazing teenagers: our son Mason, 17, a junior in high school, and our daughter Reese, 15, a sophomore. They are starting to explore college options and figuring out what path they want to take in life. It’s a busy and exciting time, and finding a kidney will give me the strength and energy to be fully present for them.