Who are we fundraising for?
The Myositis Association –Australia Inc
is a registered charity, run by volunteers, who have Myositis.
Our goal is to help more people keep in touch, share their experiences and learn practical ways to manage their condition.
We also work to raise awareness of Myositis and to support Australian-based research looking into ways to prevent and treat the disease as well as improve the quality of life for those living with Myositis.
For more information check out:
https://myositis.org.au
Click the logo below
The Myositis Association –Australia Inc
is a registered charity, run by volunteers, who have Myositis.
Our goal is to help more people keep in touch, share their experiences and learn practical ways to manage their condition.
We also work to raise awareness of Myositis and to support Australian-based research looking into ways to prevent and treat the disease as well as improve the quality of life for those living with Myositis.
For more information check out:
https://myositis.org.au
Click the logo below
The Myositis Association is dedicated to:
- Providing a network of support for people living with Myositis and their carers, family members and friends
- Assisting people to help manage their condition.
- Connecting people to keep in touch via newsletters, social media, meetings and events where people can access information and share experiences.
- Supporting research which includes fostering relationships with researchers and raising funds to prevent, diagnose and treat the disease as well as improving the quality of life for those living with Myositis.
- Increasing awareness of Myositis among health professionals and the general public.
- Providing a network of support for people living with Myositis and their carers, family members and friends
- Assisting people to help manage their condition.
- Connecting people to keep in touch via newsletters, social media, meetings and events where people can access information and share experiences.
- Supporting research which includes fostering relationships with researchers and raising funds to prevent, diagnose and treat the disease as well as improving the quality of life for those living with Myositis.
- Increasing awareness of Myositis among health professionals and the general public.
Moving for Myositis
Let's make each step count, raising both awareness and funds for those affected.
Together, we can make a difference!
Together, we can make a difference!
7News Interview
Events
March 9TH
Bunkr Community fundraising Day
A huge thank you to Gregg and the bunker family for their fundraising efforts! A massive thank you to everyone who came out and supported us. We raised a whopping $2200 for the Myositis Association Australia.
An insight into the morning:
We're thrilled to invite you to a morning gym session where everyone can enjoy and have some fun together! Take on a group challenge and conquer 250 calories on the Skii machine. There will be major prizes including Muscle Republic vouchers and many other exciting rewards. Plus, indulge in free ice baths, zooper doopers, bacon and egg rolls, and a coffee van to fuel your energy.
We encourage you to join the ski challenge in a group if you don't have one message BUNKR on Instagram and we will allocate you a team. We simply request a note donation per participant. Your contributions to the Myositis Association Australia are greatly appreciated and will make a meaningful impact.
An insight into the morning:
We're thrilled to invite you to a morning gym session where everyone can enjoy and have some fun together! Take on a group challenge and conquer 250 calories on the Skii machine. There will be major prizes including Muscle Republic vouchers and many other exciting rewards. Plus, indulge in free ice baths, zooper doopers, bacon and egg rolls, and a coffee van to fuel your energy.
We encourage you to join the ski challenge in a group if you don't have one message BUNKR on Instagram and we will allocate you a team. We simply request a note donation per participant. Your contributions to the Myositis Association Australia are greatly appreciated and will make a meaningful impact.
March
23rd
7.30- 10am
23rd
7.30- 10am
Pilates for Myositis Fundraiser
We extend our immense gratitude to Alex, Arizona, and the Synergy team for creating a truly remarkable morning, which resulted in raising $2700 ion the day and even more through the My Cause website. A heartfelt thank you to everyone who participated in the fantastic Pilates session, and a special appreciation to those who generously contributed by bringing in delicious baked goods to sell. Your collective efforts have made a significant impact, and we are deeply grateful for your support.
An insight into the morning:
Coffee and morning tea will be available for purchase throughout the morning
20-70% off all activewear in store including The Upside and Nimble
Pilates Schedule:
Proceeds will go towards the fundraiser for a lovely patient of ours - Anne Croker, who suffers from the condition Inclusion Body Myositis.
Anne's daughter Kate is running the Newcastle Marathon on April 21st
2024, to raise money for Myositis Association Australia, supporting research on this rare degenerative disease
An insight into the morning:
Coffee and morning tea will be available for purchase throughout the morning
20-70% off all activewear in store including The Upside and Nimble
Pilates Schedule:
| Reformer Pilates Classes: | Mat Pilates Classes: |
| 7.45am | 8am |
| 8.30am | 8.45am |
| 9.15am | |
| $30/class | $25/class |
Proceeds will go towards the fundraiser for a lovely patient of ours - Anne Croker, who suffers from the condition Inclusion Body Myositis.
Anne's daughter Kate is running the Newcastle Marathon on April 21st
2024, to raise money for Myositis Association Australia, supporting research on this rare degenerative disease
April 13th
5-7pm
5-7pm
Silent Auction - Auction night
Get ready for an unforgettable day filled with incredible items up for grabs! Whether you're seeking unique collectibles, luxurious experiences, or one-of-a-kind treasures, our auction has something for everyone.
But wait, there's more! Attend the auction at Romanos Hotel, and you'll automatically be entered into our prize draw! 🎁 Who knows? You could be one of our lucky winners!
Stay tuned as we announce additional auction items on Auctions Plus
Don't miss your chance to bid and win big!
Mark your calendars and get ready for a day of excitement and generosity at Romanos Hotel! See you there!
To register and bid on Auctions Plus, use the link below from the 11th April - 13th April.
But wait, there's more! Attend the auction at Romanos Hotel, and you'll automatically be entered into our prize draw! 🎁 Who knows? You could be one of our lucky winners!
Stay tuned as we announce additional auction items on Auctions Plus
Don't miss your chance to bid and win big!
Mark your calendars and get ready for a day of excitement and generosity at Romanos Hotel! See you there!
To register and bid on Auctions Plus, use the link below from the 11th April - 13th April.
Febuary 24th
Ladysmith park perennials
Lady Smith Park Perennials generously allowed us to further our fundraising efforts and create more conversations about Myositis on their open day.
A huge thank you to everyone who came out to Lady Smith Park Perennials and donated!
We raised over $1000 for the Myositis Association Australia!
A huge thank you to everyone who came out to Lady Smith Park Perennials and donated!
We raised over $1000 for the Myositis Association Australia!
Mums Story
In her early 40s, my mother's (Anne Croker) life course took a turn when weakness and overwhelming fatigue forced her to stop working, without knowing the cause. Chairs, stairs and toilets seats as mum humorously puts it, became ‘her worst enemies’.
Unfortunately, like many uncommon illnesses, the path to a diagnosis was long and arduous. Specialists often dismissed her descriptions and physical symptoms, once even advising her to go home and do squats. This left mum questioning if it was all in her head. Facing challenges such as frequent falls, fatigue and numbness in limbs made daily activities difficult.
A fortunate moment came in 2015 when mum’s GP administered muscle strength tests, identifying a myopathy. Swiftly, she was referred to a wonderful Neurologist at St Vincent’s in Sydney who performed blood tests, nerve conduction tests, heart MRI, scans, and a muscle biopsy that initially suggested Polymyositis. It wasn’t until 18 months later that a second muscle biopsy revealed the true diagnosis: Inclusion Body Myositis (IBM).
IBM causes muscles to become thin, weak and destroy themselves. It is regarded as rare and there are currently no effective curative treatments for IBM, but things can be done to manage symptoms. Luckily, treatments like steroids and Immunoglobulin (IVIG) have provided partial relief for mum, but this isn't the case for everyone.
In mum’s daily life, she relies on a wheelie walker or wheelchair for physical support. She is concerned by the minimal awareness and delays in diagnoses faced by others.
Moving forward, trials for different treatments offer hope.
This is where I seek your support – to raise funds for all myositis trials and to amplify awareness among individuals and medical professionals alike.
Together, let's make strides towards a brighter future for those battling all forms of Myositis!
In her early 40s, my mother's (Anne Croker) life course took a turn when weakness and overwhelming fatigue forced her to stop working, without knowing the cause. Chairs, stairs and toilets seats as mum humorously puts it, became ‘her worst enemies’.
Unfortunately, like many uncommon illnesses, the path to a diagnosis was long and arduous. Specialists often dismissed her descriptions and physical symptoms, once even advising her to go home and do squats. This left mum questioning if it was all in her head. Facing challenges such as frequent falls, fatigue and numbness in limbs made daily activities difficult.
A fortunate moment came in 2015 when mum’s GP administered muscle strength tests, identifying a myopathy. Swiftly, she was referred to a wonderful Neurologist at St Vincent’s in Sydney who performed blood tests, nerve conduction tests, heart MRI, scans, and a muscle biopsy that initially suggested Polymyositis. It wasn’t until 18 months later that a second muscle biopsy revealed the true diagnosis: Inclusion Body Myositis (IBM).
IBM causes muscles to become thin, weak and destroy themselves. It is regarded as rare and there are currently no effective curative treatments for IBM, but things can be done to manage symptoms. Luckily, treatments like steroids and Immunoglobulin (IVIG) have provided partial relief for mum, but this isn't the case for everyone.
In mum’s daily life, she relies on a wheelie walker or wheelchair for physical support. She is concerned by the minimal awareness and delays in diagnoses faced by others.
Moving forward, trials for different treatments offer hope.
This is where I seek your support – to raise funds for all myositis trials and to amplify awareness among individuals and medical professionals alike.
Together, let's make strides towards a brighter future for those battling all forms of Myositis!
What
Moving for Myositis
Where
Newcastle Harbour
The Station, Watt Street, Newcastle NSW, Australia
The Station, Watt Street, Newcastle NSW, Australia
When
April 21, 2024, 6:00 AM - 10:00 AM
our partners
A heartfelt thank you, your support is truly making a significant impact on much-needed funds for the research of Myositis.
Moving for Myositis
Let's make each step count, raising both awareness and funds for those affected.
Together, we can make a difference!
Together, we can make a difference!
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