FREE CONFERENCE    |    FREE CONFERENCE
Focus on Race,
Culture and Identity
This year's Getting Our Fair Share will explore solutions to the challenges many women with cancer face because of biases around race, culture, language, sexual orientation, gender identity and gender expression. This is an interactive, action-oriented event.  Come share your perspective and amplify your voice!

You can attend in-person or via streaming on a virtual platform.
DATE
June 26-27, 2024
Location
Convene
4 W 43rd St
New York, NY 10036
Virtual
Those opting to attend via livestream will receive a link by email.
Agenda
Wednesday, June 26, 2024
8:00 AM
Breakfast
9:00 AM
Welcome
Carol Evans, CEO at SHARE Cancer Support
9:10 AM
Introduction
Ife Lenard, Vice President of DEIB at SHARE Cancer Support
Ife presents our version of the Diversity Flower, the significance for the day’s event, the dangers of unconscious bias in medical treatment and patient care, and how those who have a petal, will be grouped by color to discuss the takeaways from content discussions.

(The Diversity Flower was created by Deborah L. Plummer, who for 30 years has been a practicing psychologist, university professor, chief diversity officer, author, and speaker on topics central to racial equality, inclusion, and mutual respect.)
9:30 AM
Keynote - Dr. Egli Colón Stephens 
10:00 AM
Panel: Breakthroughs in Detection, Treatment and Patient Profiles
Technology is providing new and important opportunities for better detection and more effective treatments, such as a urine test for early detection of cervical cancers and outsmarting chemo-resistant ovarian cancer cells.

Topics will include the following:
          - The pros and cons of technology and detection
          - Who is benefitting from breakthrough discoveries and how can we make sure that underserved communities benefit from improved technology?
         - How is the medical community responding to changing patient profiles for younger women, older women and transmen?
11:00 AM
Break
11:15 AM
Breakout Sessions
A) Managing Cultural Differences
This session will focus on language and cultural barriers that affect varying ethnic groups:
          - How deeply rooted cultural ideas about cancer impact screening, diagnoses, and treatments.
          - Immigrant patients and medical trust
          - Language and cultural barriers to care

B) The Impact of Age
This session will focus on how age impacts diagnosis, treatments, and responses to patients outside of the traditional medical parameters relating to age.
          - The increase of younger women with cancer diagnoses
          - Misdiagnosis of younger women
          - The new phenomenon of overdiagnosis and treatment of women over 75 (especially since life expectancy has increased and older women are living more dynamic lives)
          - What does survivorship look like?

C) Providing for Social Determinants of Health
This session focuses on how the medical system is responding to cancer patients with disabilities:
           - Women with disabilities are less likely to be screened for breast and cervical cancers. What can be done to change these practices?
           - Are technological advances considering or aiding people with disabilities?
12:15 PM
Networking Luncheon
1:15 PM
Breakout Report Backs
1:45 PM
Identity and Health
This will focus on how the medical community responds to gay women, trans men, gender expansive persons and other members of the LGBTQIA community.
          - Lack of outreach and data
          - Hormonal treatments and cancer screenings
          - Lack of sensitivity training for medical professionals
          - Challenges of inclusiveness even within organizations that support LGBTQIA patients
2:30 PM
Race, Policy, and Healthcare
This session would look at the systemic barriers to proper healthcare and how legislation that affects women affects cancer care.
           - Cancer trials and community distrust
           - Long held cultural/racial ideas that impact treatment
           - Access to new equipment, medicine and long-term care -- and its cost
           - Why women have higher incidences of misdiagnoses and how to handle it
           - What happens when you don’t respond to the treatment?
           - Sensitivity treatment
           - How is personal advocacy received from people of color?
3:15 PM
Love, Sex and Relationships
This session would focus on the importance of treating the whole woman and the impact that the cancer may have in her personal life, relationships and self-esteem.
          - Managing the emotional impact of a cancer diagnosis and treatment
          - How women have regained/maintained their self-esteem and agency over their relationships with partners and family members
          - More medical professionals are understanding the importance of treating the whole person and not just the cancer
          - Impact of how body and hormonal changes can affect sexual relations and reproductive interests
          - The importance of sensitivity training at all levels of care  
          - How cancer impacts work and career
          - The mental and emotional impact of survivorship
4:00 PM
Wrap Up/Polling
Thursday, June 27, 2024
Patient Navigation Symposium
8:00 AM
Breakfast
9:00 AM
Welcome
Carol Evans, CEO at SHARE Cancer Support
9:10 AM
Latina Impact Reveal 
Presenter: Lina Acosta, Researcher
9:30 AM
Navigation Workstream Panel 
Review the content of the 2024 SHARE Navigation Workstream Sessions and panel discussion. Highlights include a discussion on oncology technology for patients/caregivers and professionals, navigation reimbursement with emphasis on the 2024 CMS Principle Illness Navigator billing codes, a review of best practice standards for assessing social determinants of health for the population we serve, and the expansion of the SHARE Cancer Support Navigation Program.  

          Moderator:
          Patricia Strusowski, CEO & Co-founder
          TurnKey Oncology

          Panel:
          Alyssa Crews, Assistant Vice President
          Orlando Health’s Cancer Institute

           Zilipah Cruz, Orlando Health Cancer Institute

           Kristina Rua, MSN, RN, OCN, ONN-CG
           Executive Director of Clinical Operations
           Sylvester’s Comprehensive Cancer Center in Miami
10:30 AM
Break
10:45 AM
Technology Breakout Sessions 
Provide three demos of oncology patient and professional platforms.

A) CanSurround: CanSurround has created a digital health platform solely focused on reducing distress and enhancing well-being for people living with cancer. Founded by seasoned oncology and digital health experts, and grounded in the integrative health model for cancer care, CanSurround attends to the whole person—mind, body and spirit.

          Presenters:
          Jill Tierexra, RN, MSN
          VP of Product Development
           Findpeace, PBC

           Lisa Marshall, CEO & Founder
           Specialty Rehabilitation, Inc.

B) Cancer Insights: Cancer Insights provides an end-to-end oncology product suite that allows care teams to run collaborative and streamlined clinical workflows from referral to survivorship on an EMR integrated and AI enabled platform.

           Presenter:
           Sharon Hensley-Alford, CIO & Co-founder
           Cancer Insights

C) SurvivorPlan: SurvivorPlan is a next generation solution for cancer care management. Smart, easy to adopt, and cost-effective, SurvivorPlan enables cancer centers to assess each patient’s unique needs, address those needs, and provide personalized care plans for individual cancer patients, survivors, and their care teams.

          Presenter:
          Elaine Warren, MCS
          Founder & CEO,
          SurvivorPlan
12:00 PM
Networking Luncheon
1:00 PM
SHARE Cancer Support Navigation Program 
Review the SHARE Cancer Support Navigation Program Model and panel discussion. In 2024, SHARE Cancer Support created a virtual-navigation program for patients and caregivers in the New York City area in conjunction with local Providers and Hospitals. The navigation team will review the onboarding process, recruitment of patients, assessment of patient barriers and interventions, and outcome metrics.  

          Moderator: Patricia Strusowski, CEO & Co-founder
          TurnKey Oncology

           Panel: 
           Ashley T. Tsang, MD
           Assistant Professor, Breast Surgery
           Icahn School of Medicine at Mount Sinai

          Zarek Mena, OPN-CG
          Financial Patient Navigator
          Share Cancer Support

          Sandra Morales, Patient Navigator
          Share Cancer Support

         Patient of Dr. Tsang
2:00 PM
Navigation Year Three/Table Discussions and Summary
2:50 PM
Call to Action
3:00 PM
Conference Closes
**AGENDA SUBJECT TO CHANGE
Attending the Conference
In-Person
LOCATION
Convene
4 W 43rd St
New York, NY 10036
VIA SUBWAY
‣ Take the 7 train to 5th Ave stop, Exit via 5th Ave & 42nd St at SW corner
‣ Take the B, D, F, M to 42nd St-Bryant Pk stop
‣ Take the N, Q, R, W, 1, 2, 3 to Times Square - 42nd St stop, Exit via Broadway & 42nd St at SE corner
Virtual
Those opting to attend via LIVESTREAM will receive a link to the email you used for registration.
Sponsors
#GettingOurFairSHARE

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