Walk-N-Roll is the biggest Spina Bifida Association "event" of the year. You're invited to be part of this amazing community dedicated to building a better and brighter future for all those impacted by Spina Bifida.
This year there will be Walk-N-Rolls for Spina Bifida across the country and we can’t wait to see you. Whether you're joining us to connect with community, fundraise with a friend or family member or dedicated to improving lives, Every Mile Makes a Difference.
Connect: Walk-N-Rolls bring people impacted by Spina Bifida, their parents, grandparents, siblings, friends, relatives, healthcare providers, and key community stakeholders together. It’s a festive gathering filled with fun, smiles, celebration, and connections.
Raise Awareness: Spina Bifida is the most common permanently disabling birth defect associated with life. Approximately 166,000 individuals in the United States have Spina Bifida and yet most people don't know what Spina Bifida is or what to expect. Walk-N-Rolls are such an important opportunity to share information with loved ones and our local communities.
Fundraise: The money raised helps fuel research, access to clinical care, advocacy, educational resources, informational programming, and support -- at the local, state, and national level. Here are just a few ways fundraising dollars help build a network of resources for those impacted by Spina Bifida:
-Advancing education and support through the National Resource Center, providing 1:1 guidance for families, in-person and virtual programming featuring medical experts, parents, and adults living with Spina Bifida, and fostering opportunities for people to connect.
-Expanding efforts, through the Spina Bifida Collaborative Care Network, to improve clinical care for all those living with Spina Bifida and help to ensure that guidelines for care are understood and implemented.
-Ensuring the voices of people with Spina Bifida are heard on Capitol Hill. Support of bills that impact those with Spina Bifida including access to coordinated, affordable, comprehensive care; insurance coverage; and workplace employment.
-Support that helped drive the creation and advocates for funding of the National Spina Bifida Patient Registry (NSBPR) and the Urologic Protocol for Your Children with Spina Bifida, both housed at the Centers for Disease Control.
Spina Bifida Walk-N-Rolls are held across the country stretching from the west coast to the east coast. Find the Walk-N-Roll near you. Join the Fun. Build a team.
Every Mile Makes a Difference.